My Saga Continues, FOUND: The Cause of My Horrendous Back and Side Pain

SOOOOO...... I have been having horrible, piercing, persistent bi-lateral side pain since last fall. This March my back was so bad I was crawling, non-stop crying, and the symptoms have never fully resided. In February I went into urgent care with really bad side pains in what I thought may have been appendicitis. I was sent home with a diagnosis of chronic constipation, lovely, I know you all wanted to know that. That diagnosis is true enough, what they neglected to tell me was that I still have my Esssure implants in from my sterilization surgery nightmare and it is protruding 1-2millimeters out of my uterine lining. My primary care doctor told me this last week when I went in to have my back checked. As I have said before, I can take pain, even this extreme pain, I was resolved to live with it miserably for the rest of my life. I had surgery in June 2008 to remove the implants and my fallopian tubes. My surgeon felt it was the best option and wanted to be sure I didn't have anymore complications with the Essure Coil Implants. So why are they still in me, floating around, hanging partially out of my uterus causing me untolerable pain? It was such a tough decision to be sterilized, I wanted to have my own biological children with the man I love. We weren't willing to risk my life and Forrest and I made this decision with much thought and counseling. This is one of many complications with this procedure and my emotions emerge again every time something happens. I am scared, worried, and hurting. Surgery was the last thing on my mind, I have had my fill. I find out next week what I have to do, these implanted coils have to come out. Either by themselves, or with my uterus attached. This sucks!!!

My Body's Betrayal......................

I decided that when Maggie nudged me into creating this blog that I wouldn't turn it into a poor me festival. Sticking to those guidelines has been easy, the tendency to cover up my issues and suck it all up has become second nature. My brain has plenty of time to think about how Ehlers-Danlos has effected my life and I don't have many people to talk to about it. So why then, when having so much to say about my special condition, am I afraid to write it down. Maybe sharing my torment could help someone else who is stuck in this syndrome or help another who cares for someone in my same predicament.

Ehlers-Danlos Syndrome. Hmmm...... Type III, Hypermobility type. That's me. Actually, there is a whole lot more to me than this disability. Reminders that EDS isn't my title, character, or societal definition takes serious commitment. Wrapping myself in a day of pain, the piercing pain in my sacrum. Every second is a bucket of pain, pills, and desperation. Telling Forrest that EDS has become my definition of myself, who i am, and where I am or not going. It's strange, the hurt has been so prevalent for so long that I never know what is really hurt, and it takes something crippling, popping, cracking, mis-aligning, searing, or stabbing to get my specific attention. Attention to details, that is more my game. The overall picture hurts undoubtedly and acknowledgment gives the pain power. So powerful that if not suppressed and ignored surely begets my disabilities definition of myself. I am pain, I am Ehlers-Danlos Syndrome Type III with fibromyalgia, scoliosis, and chronic myofascial pain syndrome. There has to me more.

The guy in the picture has extreme skin hyperextensity, I think I have seen him on TV in a freak circus. Yet again giving bad information for the world to misunderstand our situation. At least he is making a living at being EDS inflicted. We could all be so lucky.